Informative Web Sites

About Face
USA Website
International Website

ACPA American Cleft Palate Craniofacial Association
Website
Contact: Nancy Smythe

Apert Syndrome
Website
Contact: Don & Cathie Sears

Cleft Advocate
Website
Contact: Debbie Oliver

Cleft Palate Foundation
Website

FACES: The National Craniofacial Association
P.O. Box 11082
Chattanooga, TN 37401
Website

Forward Face
Website
Contact: Terri Brooks

Goldenhar Syndrome Support Network Society
9325 163 Street
Edmonton, Alberta
T9W 1J2 Canada
Website
E-mail: support@goldenharsyndrome.org
Contact: Barb Miles

Hemangioma
Website

Hemangioma Hope
Website

Hemifacial Microsomia / Goldenhar Network
Website

Hemangioma Newsline
Website

Let’s Face It USA
Website
Contact: Betsy Wilson

Moebius Syndrome Foundation
Website

Pierre Robin Network
Website
Contact: Nancy Barry
nancy@pierrerobin.org

Stickler Syndrome
Stickler Involved People Official Website
Website

Sturge-Weber Syndrome
The Sturge-Weber Foundation
Website

Treacher Collins Connection
Website
Contact: Judy Moesher
Email address: judy@tcconnection.org

Related Resources
American Speech-Language-Hearing Association (ASHA)
National Health Information Center
National Institute of Dental & Craniofacial Research (NIDCR)
Surgeon General’s Conference on Children & Oral Health