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The Parent-to-Parent Resource Library has credible books, journals, and websites for information on Craniofacial issues. You can get to various respected websites using the links below. If you would like to view the printed material for a given condition, please contact the Craniofacial Office via e-mail using the form below or calling 423-778-9192.
GENERAL CRANIOFACIAL INFORMATION
Craniofacial Foundation of America - This foundation helps craniofacial patients and their families. http://www.craniofacialfoundation.org
International Craniofacial Institute – This websites offers information on many syndromes and anomalies.
http://www.craniofacial.net/
Let’s Face It – This website serves as an online resource distributing information about facial differences. http://www.dent.umich.edu/faceit/about/mission.php
Smile Train - An international charity that provides surgery to those in need, as well as providing training to doctors in the region. http://www.smiletrain.org
Apert Syndrome
Teeter's Page - This website offers information and support for Apert Syndrome as told through the story of one girl with Apert Syndrome.. http://www.apert.org/
Glodenhar Syndrome
Goldenhar Syndrome Support Network Society – This website offers support and information to families and individuals and their related conditions. http://www.goldenharsyndrome.org/index.html
Moebius Syndrom Foundation
Moebius Syndrome Foundation – This website offers information, resources and online support for the Moebius Syndrome. http://www.moebiussyndrome.com/
Pierre Robin Syndrome
Pierre Robin Network - This website offers resources, support, and information related to the Pierre Robin Syndrome. http://www.pierrerobin.org/
Stickler Syndrome
Stickler Involved People - This website offers resources adn information related to the Sticker Syndrome. http://www.stickler.org/sip/
Return to Parent-to-Parent Network homepage
Return to Craniofacial Foundation homepage
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